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RUSSEL
H. SWERDLOW, MD, Services Initiative
Chair reports that the Virtual Memory
Disorders Clinic has held a successful
second "session."
As the
service component of AlzPossible, the
“Virtual Memory Disorders Consultative
Clinic” (VMDCC) attempts to provide
primary care internists, psychiatrists,
and neurologists with access to tertiary
dementia sub-specialist expertise,
without actually referring the patients
themselves. In the Commonwealth of
Virginia, demand for tertiary level
dementia resources currently exceeds its
availability. It is hoped this service
will provide an alternative mechanism
through which primary physicians can
obtain desired tertiary-level assistance
for questions that arise during the
course of diagnosing or managing persons
with cognitive disorders.
We
recognize the challenges primary
physicians face when caring for persons
with dementia may vary between different
regions of the Commonwealth. The impact
of an AD diagnosis on an individual and
their family is influenced by education
and financial factors, as well as by the
availability of various ancillary
services such as adult day care.
Therefore, a secondary intent of this
virtual clinic will be to identify on a
state regional basis the most immediate
needs of persons with dementia, their
families, and their medical providers.
To our
knowledge, this Virtual Memory Disorders
Consultative Clinic is the first of its
kind. For the pilot version which we
had devised, the state will be divided
into distinct geographic districts. A
“clinic hour” for each district is
specified. Advance notice of the clinic
hour is then disseminated to district
physicians. During the hour, district
physicians with questions about dementia
diagnosis/management issues are able to
join a telephone conference call lead by
a tertiary care dementia
sub-specialist. In this manner, primary
physicians can seek input from the
specialist on individual patients felt
not to require formal referral, but who
might nevertheless still benefit from
expert advice.
In the
pilot version, this virtual clinic is
“staffed” by the three memory disorder
sub-specialists of the University of
Virginia (Drs. Swerdlow, Geldmacher, and
Brashear). Staffing centralization will
help the organizers identify practical
limitations inherent to the model, as
well as facilitate format adjustments.
We have also been using our Services
Initiative workgroup to leverage our
outreach (our many thanks to
Marilyn Pace Maxwell for her
tireless efforts!).
Participants can use the one-hour
session to ask general questions they
may have about dementia
diagnosis/management. Ideally, it is
hoped that the springboard for any
didactic discussions will stem from
reviews of actual patients that
participants are caring for.
In our
one-hour sessions, 5-7 cases can be
presented and discussed. In this way,
participants can get instant "curbside
consultation" regarding real-life
patient-care issues they are being faced
with. Those presenting a patient can
take a few seconds or minutes to present
their case. The focused questions the
clinician has for the patient being
presented are framed and then addressed
as best as possible.
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If you are interested in participating
in this program or supporting/partnering
with the Virtual Clinic,
please click here. |
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Rationale for
Consultative Memory Disorders Clinics
Clinical care of persons
with dementia is not restricted to any
one medical specialty. Diagnostic and
management services can be provided
through family physicians/internists,
psychiatrists, or neurologists. Within
each discipline, it is possible to
identify a group of sub-specialists with
additional training and expertise in the
cognitive disorders. For internists and
psychiatrists, sub-specialists are
identifiable through their participation
in post-graduate geriatric training
programs. For neurologists, dementia
sub-specialization is defined by
post-graduate training that emphasizes
the neuroanatomy, neurophysiology, and
neurochemistry of brain cognitive
functions.
In the 1980’s, the
National Institute of Aging (NIA) of the
National Institutes of Health (NIH)
established regional centers designed to
enhance our understanding of Alzheimer’s
disease (AD), the most common form of
late-onset dementia. This lead to the
development of clinics dedicated to the
care of persons with memory disorders.
To staff these clinics, it was necessary
to concentrate dementia sub-specialists
at tertiary referral centers.
Due to the ongoing
expansion in the number of persons with
dementia, as well as the increasing
complexities in the diagnosis and care
of these persons, during the 1990’s a
need for additional tertiary referral
memory disorders clinics was
identified. These clinics provide
essential services that otherwise might
not be available to the public. For
patients and their families, they allow
for expert “second opinions”, and
provide access to investigational
treatments. For primary care providers,
memory disorders clinics represent a
diagnostic resource for cases in which a
diagnosis is unclear, and can provide
state-of-the-art assistance with patient
management issues.
The University of
Virginia Memory Disorders Clinic
In 1996, a dedicated
Memory Disorders Clinic (MDC) was
established at the University of
Virginia (UVA) Health System. The
clinic pooled appropriate expertise
within the UVA Department of Neurology.
This expertise included (but was not
limited to) two cognitive disorders
sub-specialist neurologists, a
neuropsychologist, a dedicated nurse
coordinator, and social worker.
Multiple members of the group were
experienced in the conduct of AD drug
trials.
Since its inception, the
UVA MDC has fulfilled essential
clinical, educational, and
investigational services to the
Commonwealth. The multidisciplinary
clinic is held each Thursday from 8 AM
to 12 PM, at the Fontaine Research
Complex in Charlottesville, VA. Physicians in internal medicine,
psychiatry, and neurology
residency/fellowship training programs
regularly rotate through the clinic as
part of their post-graduate medical
training. Clinic staff is regularly
recruited for continuing medical
education and patient education events.
Because of its large patient base and
professional resources, the MDC has been
asked to participate in numerous
industry and federally sponsored AD and
vascular dementia drug trials. Here in
the Commonwealth, it serves as the
principle gateway of dementing
individuals to experimental
therapies.
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